Thanks for the responses. We got three solid leads, two persons
indicated who have direct experience with the disease.

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* Bill Caskey                                  *
* Director, Research & Grants Administration   *
* The Children's Mercy Hospital                *
* 2401 Gillham Road                            *
* Kansas City, MO  64108                       *
* Voice:        (816) 234-3879                 *
* Fax:          (816) 855-1982                 *
* E-mail:       xxxxxx@cmh.edu                *
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